Heh. Sorry for the lack of updates. I have a new growth on my side that's about 31 lbs, 36" tall, and has a mohawk.
So we ended up getting to the ER about 9 pm, and didn't get back to a room until after 10:30. When we were triaged they put in a 6" foley catheter in his stoma, it was the smallest they had, and it barley fit.
He was the slightest bit perturbed with that.
We went and sat in the xray waiting room away from all the disgusting kids that were in the ER.
Seriously, this lady had 5 little girls under the age of 6 and she should not have been a mom. Those poor little girls had snot caked on their faces, their hair was ratty as could be, and it was 65* out there and the mom had them dressed in hats, coats, and gloves. The poor things were sweating to death and hacking up a lung all over the ER. They were running around and looking at all the babies in car seats and strollers and coughing all over them. The mom just sat there and laughed at them.
I think once they were triaged we all took a vote and it was unanimous that they get the next available room. Thank heavens the nurses agreed and shuffled them out as quickly as she could.
I then proceeded to grab the wipes that were sitting at the check in desk and wiped Rhett's chair down. I kept walking away whenever the girls would come up to us, and telling them that Rhett was really sick and they didn't want to come near him.
Ya. I lied. But I'll be damned if they were going to touch my kid.
I don't blame the girls. I blame the parents.
So anyways, we walk down to the xray waiting room where there are not so many cooties, and sit down. Not 5 min after that I realize that Rhett's gurgling from his gut again and his foley catheter is dangling from his wheel.
So. I head back into cootie land and this time the nurse grabs a 10" catheter because his stoma has opened up a bit.
We meander our way back to xray, and watch the fish for a bit, then they come and get us and take us to our room. Not 5 seconds after we get into the room the foley falls out again.
Now for those of you that don't know, the catheter is inserted and there is a balloon at the end of it that you fill up with 5cc of water. These balloons kept popping. Which is what happened with his original Mickey Button. So just to get you up to date, this is the 5th balloon that has popped in him since 6 pm that night. (He popped his foley catheter that I put in him at home as well.)
I hit the nurses button and they come in with a bunch of different sizes of foley's to try with him. They try a 12" but can't get it in so they go back to a 10". We get it in and get him all taped up and put him in his chair. We settle down and watch some TV for a bit.
Then he explodes.
I never knew that a little body could hold so much poo.
I open the door, (before him and I both die of noxious fumes) hit the nurse button, and start the clean up. As the nurse walks in guess what falls out?
His freaking catheter.
I was so done at this point.
The attending came in during all of this and wondered aloud after hearing how many catheters he had gone through wondered aloud if for some reason he had super high acidity in his stomach for some reason. Maybe a bug, who knows. So she decided to give him some antacid.
So this time they are able to get a 12" in. Which is only 4" away from his usual 16" button. It was a tight fit, and he bled a little but it worked.
So after Rhett is all cleaned up, we decide to keep him semi naked for the time being. You know. In Case he tries to explode again.
I leave him in with the nurse, and go into the bathroom to change into a purdy pair of scrub pants that they were nice enough to hand me.
He hangs out for a bit and we watch some more TV. No more explosions, and his catheter stays in.
By now the resident is feeling cocky and decides that we can put the 16" button in. I sigh and tell them okay, but if it doesn't go in easily then I want to talk to surgery.
Well, he starts pushing it in slowly, and he gets it half way in and it gets stuck. He tries pushing it in, but doesn't want to put too much pressure on it, so then he tries to pull it out. Well when he pulls on it Rhett freaks more than putting the pressure on it to stick it in. So I tell the resident, "Here just let me do it. and I push down on it really quick. Rhett jumps and then is fine.
We fill up the balloon and he cries, but I don't blame him. He's been through a lot.
So all in all, his stoma is super irritated, and I wonder if it hadn't have been better just to leave the smaller foley in for a while, and then follow up with general surgery the next day.
You know, someone who deals with this stuff all the time and knows what they are doing.
Anywho. He's super sore. He's very clingy and once again completely traumatized. He's also sleeping a ton. I'm hoping we don't end up with an infection.
Here he is just after he exploded. He feels much better can you tell?
Awww, nuts....totally busted playing with my "No, No's".
This was just after they put the 10" in. Not a happy camper.
This is a close up of his stoma. You can see how irritated it is, after being stretched so much. You can also see how the tissue came right over the hole trying to close up. Sorry, kinda graphic I know.
This is what he has been doing a lot of since the whole situation. He likes my bed. It's a little more comfy I guess.
Today his stoma is still bleeding and he's not feeling the best. He's super grumpy, and cusses me in 3 yr old language each time we change his dressing.
Yesterday we did a lot of cuddling and not much else.
These are the days of our lives.
5 days ago