Sunday, January 4, 2009

You Spin Me Right Round Baby Right Round....

Spinning, in's what I do.

See here's the thing. We cannot get over being sick. Everyone keeps passing stuff around, then it mutates into these super weird sicky genes, and then Rhett gets something else. This is my life folks. I take care of sick kids and a husband who is worse than all of the sick kids put together.

Hunter has pneumonia. Rhett has a sinus infection, he **still** has the poopies, Dakota is having issues with his medications, and we are changing things around again, Chloee? She is still having her headaches and we don't see neurology until the end of January.

I went to Wal-mart today after sitting in Urgent Care for the majority of the morning with Hunter and Rhett, and filled 9 prescriptions for 3 out of my 4 kids.

Seriously. I couldn't make this stuff up.

I had every intention of going through things and getting rid of everything imaginable, and I got nothing done today but spinning in circles.

Hunter has to have nebulizer treatments every 4 hours, his O2 sats are low, so he is hooked up to Rhett's portable sat monitor. He is on 2 different antibiotics, and he looks, feels, and sounds lousy.

He just doubles over when he coughs because he hurts so bad.

It's super hard to watch because Hunter never gets sick. My heart breaks in two to see him so miserable.

Rhett is Rhett. He is gooing snot out of every pore in his body, but it's not affecting him. He is still running around, continuing his stripping career, and being all sorts of naughty. This kids gotsa get himself into trouble every chance he gets.

No bradycardia episodes tonight so far and it's nearly 2 am. This is good folks. This is good.

Chloee ended up in bed early with the mice squeaking in her ears again. I would really like to know what is going on with her head. It keeps me awake at night more than any of the other kids and their issues. The worst thing for me is not knowing. I have to know every detail of every little thing. I may just end up in the house on the hill with rubber rooms by the time I we get a diagnosis.

Dakota has had some issues with his meds and things are super hard right now with him. The Lamictal he was on was causing him problems, and I tried to wean his Risperdal down, and it didn't work out so well. I hate the side effects of Risperdal. I hate that it puts weight on these poor kids like crazy.

If they already have issues, it doesn't help that the weight goes on and then makes them an even bigger target for being made fun of. It's just not fair.

The Zoloft is still working well, so we are keeping that the same. But if I could just find a replacement for the Lamictal and Risperdal, and a replacement that actually works for him, well that would just be beautiful.

It's rough on all of us when things get heated because meds aren't working right. It's hard to explain to the other kids why Dakota gets away with certain things that they can't, like calling me names and breaking things.

Don't get me wrong, he gets in trouble, but it has to be customized for Dakota. We can't punish him the way we would the other kids if they were doing the same thing.

Anyhow. I am just trying to find a happy medium while our lives are in the middle of chaos again. It's not all bad chaos, it's just chaos in general.

We like to do things big here at the Bird nest, that's all I'm sayin.

On to a different subject you LOVE my new blog layout? Seriously Rebecca is A-M-A-Z-I-N-G.

You can get your own custom layout from her too. Just click on the Rebecca Creates button on the left side bar. Do it. You know you want to.

Also, I finally, (FINALLY!!) added those of you that said you wanted to be added a few months ago.

But if there is anyone else out there who would like to be included on our link list, please just leave a comment and let me know who you are, your blog address, and what category you would fall under. Special Friends, T21 Friends, or Friends with heart defects.

Thanks a Bunch!!


Kathy said...

Well, ok, I'd love it if PJ's blog was added to your link list, in the T21 category.

Thanks so much!!

Ally in Wonderland said...

I wanna be on your link list!! I wanna be on your link list!!!

I am Ally In Wonderland and my link is

And I think I'm a special friend. I don't really fit in the other two categories.

Thanks Pam!!

tekeal said...

we are T21 friends and would like to be added: thanks and all the best for 2009.

My Three Sons said...

I'm telling you, if we could just live closer you and I could take kid shifts. I was up until 3:00AM with Carson last night. He had one of the most scariest asthma attacks to date. Wed. cannot get here fast enough.

Hope everyone starts feeling better real soon.

Love Kaci and Carson

Jaimie said...

I'd love to be added to your link list! I dunno what you'd call me though...I'm on DownSyn, but not a parent (almost SPED teacher) hope you can find a category for me!


Herrin Family said...

I don't really know how I stumbled onto your blog, it was linked to someone who had paid mine a visit. Interesting because that blog is a general family blog and not really related to your topics. HOWEVER, I have a 14 year old that has Asbergers and I never considered the possiblility of blogging about the ins and outs ups and downs, etc and connecting to a community. I loved reading up on your wonderful life struggles. It makes me feel connected. I also am caregiver to a 22 year old austisic non verbal boy - lots going on there. I would love to follow your blog, you are an inspiration and maybe, just maybe your snot and poop filled ponderings will lighten my day.

Cami/Larry/&Austin said...

we would love to be added your family is just adorable I am cami mom to Austin who of course is also a member of the T21 club anyways if you don't remember me My sister is Erika and her husband is Destry anyways you probably dont remember me from softball but probably would them our blog is

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